Sunday, April 5, 2015

Breaking News - #HAWMC

Today's WEGO Health Activist Writer's Month Challenge begs me to offer up my proudest accomplishments in the last 5 years. While I have several dozen personal accomplishments, Global Hydranencephaly Foundation has some even more amazing ones to share! How appropriate that we began as a little spark of an idea about 5 years ago...

in 2010. 


While watching Bee Movie, a quote struck me:

Image result for when did bee movie come out"According to all known laws of aviation, there is no way that a bee should be able to fly. Its wings are too small to get its fat little body off the ground. The bee, of course, flies anyways. Because bees don't care what humans think is impossible."
I remember thinking that my "B" (Brayden) was the epitome of this quote.

In 2011, Brayden Alexander Global Foundation for Hydranencephaly was incorporated as a nonprofit entity. A huge endeavor achieved by a few determined bee-keepers on a mission to bring greater awareness to the condition and the children living to defy the long list of medically subjected odds set against them.


That was in June, the 14th to be exact.

We adopted our mission, vision, our first logo (or something of the sort that included a tree with heart leaves, butterflies and a bee), started building our website and built the strength of our family-to-family resource network.


That insanely long name became our incorporated name while we worked to gain recognition with our business name - Global Hydranencephaly Foundation.

That logo-type-thing eventually evolved in to who we now know as Bennett Buzz-bee (who was named by one of our bee-keepers in a contest - Bennett - blessed little one) with the globe. 


Most fail to recognize the specific design of Bennett with his muscle-laden arms (to resemble strength of our children and their families) and the crooked smile (which several of our children so proudly shine).

"Believe in the Impossible!" - always our mantra.

But with inspiration from the Mary Kay Ash quote that I found Bee Movie had been inspired by

and the thought that Brayden's light was so big that it needed a way to continue shining beyond his years here on earth has grown in to a support network representing over 450 children, both earthly and angels, who have been given a diagnosis of hydranencephaly - their families and a support network across the web of well over 10,000.

But that is all the boring business stuff...

the greatest achievement is that Global Hydranencephaly Foundation has successfully built a family of families and brought to light so many reasons to "Believe in the Impossible!" through sharing of the lives of their children... thanks goes to all of those who have contributed. And may we share in this success for many more years to come.... 

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