Blog created & maintained by Brayden Alexander Global Foundation for Hydranencephaly, Inc. which does business as Global Hydranencephaly Foundation; a registered 501c3 nonprofit organization supporting families across the globe who have been given a diagnosis of hydranencephaly.
Thursday, March 5, 2015
I'm Gonna Love You
Whether you're adjusting to a new diagnosis of hydranencephaly and the long list of impossiblities that comes with it, wading through the highs and lows of caring for your child, battling the roller coaster of emotions that comes with the journey, or missing your bees who have since grown their little angel wings...
one of the biggest pieces of advice that I can give:
Do not waste a moment of any of that time in worry or sorrow - cherish what you have, whether it be life or memories you made.
"I woke up in tears
With you by my side
A breath of relief
And I realized
No, we're not promised tomorrow
So I'm gonna love you like I'm gonna lose you
And I'm gonna hold you like I'm saying goodbye
Wherever we're standing
I won't take you for granted
'Cause we'll never know when, when we'll run out of time"