Tuesday, February 24, 2015

Happy Ruckusmaker Day!

About to be celebrated all over the world for the first time, is annual Ruckusmaker Day.

From Seth Godin's, who I absolutely adore to follow for marketing and leadership guidance: 


"Tomorrow would have been Steve Jobs' 60th birthday. Steve's contribution wasn't invention. Technology breakthroughs didn't came out of his workbench the way they did from Land or Tesla. Instead, his contribution was to have a point of view. To see something and say 'yes' or 'no'. To not only have a point of view, but to change it when the times demanded. 

Most of all, to express that point of view, to act on it, to live with it.

There's a lot to admire about the common-sense advice, "If you don't have anything worth saying, don't say anything."

On the other hand, one reason we often find ourselves with nothing much to say is that we've already decided that it's safer and easier to say nothing.

If you've fallen into that trap, then committing to having a point of view and scheduling a time and place to say something is almost certainly going to improve your thinking, your attitude and your trajectory.

A daily blog is one way to achieve this. Not spouting an opinion or retweeting the click of the day. Instead, outlining what you believe and explaining why.

Commit to articulating your point of view on one relevant issue, one news story, one personnel issue. Every day. Online or off, doesn't matter. Share your taste and your perspective with someone who needs to hear it.

Speak up. Not just tomorrow, but every day.

A worthwhile habit."
What exactly does this have to do with OUR mission? The answer is - EVERYTHING!

Please continue to learn all that you can about hydranencephaly and the families that we represent through our efforts. These children continue to be given a diagnosis that is deemed "incompatible with life" which we know to be more often UNTRUE than true! If you're on any stage of the journey with a child given this diagnosis - or with a similarly presenting diagnosis (which I encourage you to contact me to chat more about) - please share that journey. The misconceptions are beginning to fade away and the hope is taking a stronghold in the medical community for these children.
RAISE A RUCKUS - SPEAK UP! DO NOT LET "PROFESSIONALS" BULLY YOU IN TO GIVING UP ON YOUR CHILD!

In fact, be BOLD:

Seth Godin: Keep Making a Ruckus from 99U on Vimeo.

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