From Seth Godin's, who I absolutely adore to follow for marketing and leadership guidance:
Please continue to learn all that you can about hydranencephaly and the families that we represent through our efforts. These children continue to be given a diagnosis that is deemed "incompatible with life" which we know to be more often UNTRUE than true! If you're on any stage of the journey with a child given this diagnosis - or with a similarly presenting diagnosis (which I encourage you to contact me to chat more about) - please share that journey. The misconceptions are beginning to fade away and the hope is taking a stronghold in the medical community for these children.