Monday, May 5, 2014

First Annual Global Hydranencephaly Awareness Walk/Run: Let's Roll!

June is Hydranencephaly Awareness Month! In an effort to spread awareness, as well as raise money for the Global Hydranencephaly Foundation, "Let's Roll!", a walk/run event will be held globally 
June 28th and 29th, 2014!

Registration starts TODAY, May 5th, and continues through May 25th. 
All hydranencephaly families are encouraged to participate, including our Angel Families! You can choose your location whether it's a park, track or just around your neighborhood, "Let's Roll" is anywhere & everywhere globally to raise awareness for hydranencephaly

Registration fee of $25 will include a t-shirt and a sponsor sheet. Prizes will be awarded in several categories including: Most Money Raise, Most Sponsors, &Best Decorated Wheelchair! 

Please visit the our website for more information and to register for "Let's Roll!" 


  1. Anyone in Upstate NY rolling? Maybe we can get a group together?

    1. Hi Jolene! I did create a Facebook event page and hope to encourage people to share their own events as they are establishing them across the globe... if there isn't one there yet, perhaps you are just the person to get one "rollling" :) Thanks!!


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