I hope more individuals learn to "Believe in the Impossible!"
While hydranencephaly is often misdiagnosed as several different cephalic conditions, depending on the medical professional to look at the brain scan images, there are a specific few that are most often confused. So, let me begin by briefly comparing those to clarify the differences between anencephaly, hydrocephalus, and the condition we represent, hydranencephaly.
Anencephaly is the absence of a major portion of the brain (most often noted in definition as the absence of the telencephalon), as well as the skull and scalp, that occurs during embryonic development. This condition is most often the condition first to mind when a child is said to have "no brain."
Hydrocephalus is the accumulation of excess cerebrospinal fluid (CSF) in the ventricles (cavities) of the brain. Often the brain itself can be affected due to the excess pressure that can accumulate if hydrocephalus goes without proper management; however, in several cases the affect on the brain itself is minimal.
Hydranencephaly is the absence of the cerebral hemispheres which are replaced with cerebrospinal fluid (CSF). Coincidentally, another term for the cerebral hemispheres is the telencephalon (YES, the SAME portion of the brain that is absent in the presentation of anencephaly.. thus, the confusion). Not always, but often hydrocephalus occurs as well.
With those lines defined, here are some amazing instances of living without a brain:
Hard to believe that there is anything negative to say about a loving mother sharing the life of her child.. let alone verbally attacking a sweet, innocent little baby. Unfortunately, harsh debates are all over the internet and I have personally encountered several during my five years of involvement. Here are a few, just to give you all an idea of the crass adversity these families face: