Tuesday, May 21, 2013

Toy-FULL Tuesday: pulse oximeter

(Note that this is not a sponsored review, simply a post to share an item one of the members of our family support group has discovered to work well. The information provided here has been collected from various information sites around the web and is not intended as a promotion of this particular product by GHF.)

Not all "toys" for our medically complex kids are necessarily toys as you would expect to see upon mention of the word... but they're a necessary part of their lives and a invaluable piece of the complex puzzle parents find themselves piecing together while discovering the best ways to provide the best quality of life for their child. 

Miss Savanna's New Toy: Masimo iSPO2 pulse oximeter
Check out the Masimo iSPO2 Pulse Oximeter! YES, that's a pulse oximeter compatible with iPad, iPod, and iPhone 3, 4, 4S (as well as the iPhone 5 with an additional $30 adaptor found here: Lightning to 30-pin Adaptor). 

So, what IS a pulse oximeter? I'm sure you or your child has been ill, especially in respiratory distress situations, and had this little plastic clip 

or even this bandaid-type sticker

placed on your finger, earlobe, or toe. That clip is a needle-free way to measure your blood's hemoglobin, the protein in red blood cells that works to transport oxygen from your lungs to all other tissues of your body, to present you with a reading known as your blood/oxygen saturations (O2sats, SaO2, or simply SATS in the special needs community).  It glows red because a beam of light is being directed through your skin to calculate the flow rate of your oxygenated blood. The accuracy is most genearlly 2% above or below the results you would get from a much more painful procedure called an arterial blood gas (ABG) measurement via needle in the artery. Darker skin colors, poor circulation, or cold-to-the-touch skin may skew the accuracy to a degree.

Why is a pulse oximeter a piece of equipment necessary for my child? Many children with hydranencephaly, as well as other complex medical conditions, also have varying degrees of lung disease or system dysfunction which will cause your blood oxygen levels to be lower than normal. When this level is low, your cells have a hard time functioning efficiently and can cause unnecessary strain on the rest of your body... especially your brain and your heart. Low levels for short periods of time are not the concern, it's actually fairly common in certain situations... like crying fits, illness, strenuous exercise, etc. Should those levels stay low more often than not, the need for supplemental oxygen becomes an addition concern. Being able to record trends in dropped levels allows parents and physicians to determine when a child may need to supplement with oxygen, this is often of greater concern during sleep. 

To demonstrate this specific device upon its unveiling in January 2013 at the Consumer Electronics Show, Mike Drummond from Masimo connected the pulse oximeter to the finger of Stig Avall Severinsen, the creator of Breatheology and world-record champion of the longest underwater breath hold (with a whopping 22 minutes!!). info and video obtained from Scott Jung at MedGadget

Of course there are also a whole host of stand-alone models available for purchase in a variety of price categories, but this is compact and the first of its kind to be compatible with all iOS devices.... and the iSPO2 pulse oximeter app is available in Apple's app store for FREE. And it just so happens that Masimo, the brand that presents this amazing new technology, possesses the patented technology that accurately measures oxygenation while in motion... rather than only at rest as most oximeters, making it GREAT for little ones on the go!

The app makes getting a reading simple and straight-forward. 
Just as with stand-alone models, the uppermost reading shows your oxygen saturation (SATS); below that, your pulse rate in beats per minute (BPM). The app also gives your perfusion index (PI), which is a measurement of your pulse strength, on the bottom of the main screen as well as in a waveform graph on another screen. For reporting purposes, you can log history and easily email as a spreadsheet to doctors when a concern arises. 

You can easily obtain a much cheaper model of pulse oximeter, generally in the range of $20 and up, from most medical supply companies, eBay, and amazon. After reading reviews and doing further research, this option is only hindered by it's price: $249, plus the extra $30 if you need the adaptor for iPhone 5. But you can weigh the pros to that price tag and decide for yourself if it is the best option for you. If it is, get it here:

          Masimo ISPO2-3587 Ispo2 Pulse Oximeter on Amazon.com

          iPhone 5 Lightning to 30-pin Adaptor at Apple Store 

And the Masimo iSPO2 program app is available for FREE from the Apple App Store. 

Sunday, May 12, 2013

Community Sundays: Fundraising

Sundays here on the blog, we will now be featuring ways you can bring awareness to your own communities through fundraisers and awareness campaigns. Of course, if there is ever anything you'd like assistance with in your area... please don't hesitate to contact us for assistance! We are happy to help make your event a raging success!!

This week's idea was snagged from a local hydrocephalus/spina bifida awareness group that Brayden and I were thrilled to be involved in upon moving to Washington. If you're looking for a crafty, clever, hands-on awareness event to plan in your community... this is a great one!

GHF AwarenessBee-LieveI Love Someone

Plan a date for the event and ask that participants order their choice of black & white awareness t-shirt designs from our CafePress store. You can also plan to pre-order shirts in bulk if that is an easier option for you! Those tees will be brought to the event and tie-dyed... not only does it present a fun-filled event for your participants, but it leaves a large group of individuals in your community with awareness tees to continue spreading awareness upon wearing them. At your event you can also plan silent auction or raffle items, as well as the tie-dye project. 

In any instance that you plan an event featuring Global Hydranencephaly Foundation's logo or namesake, be sure to keep in mind that funds raised must be donated to GHF in some capacity agreed upon before your event. It is unlawful to use our foundation's trademarked image or company reputation in raising funds for your family personally, though we are happy to help in those instances should you contact us directly in advance. 

Saturday, May 11, 2013

Final Days: Silent Auction

Our online silent auction featuring SO many great items is wrapping up in just 4 more days... so be sure to get your bids in on your favorites!! Featuring the many items shown in the graphic below, plus MORE!! Not only will you feel great scoring such a great deal on these items, but you will also be helping our foundation with it's final expenses due on our conference coming up next month... while any excess will be saved away for other mission efforts. Thanks, in advance, and please feel free to share this event with everyone you know who may be interested in some of these items!

Thursday, May 9, 2013

Thankful Thursday: Teacher Appreciation Week!

"A teacher affects eternity; 
he can never tell where his influence stops."  
~Henry Adams

Wednesday, May 8, 2013

Wordless Wednesday

"While there is perhaps a province in which the photograph can tell us nothing more than what we see with our own eyes, there is another in which it proves to us how little our eyes permit us to see."  
~Dorothea Lange

Tuesday, May 7, 2013

Bee-Thankful: Nurses Appreciation Week!

Our nurses, more often than not, love and support our little bees as much as we ourselves, as parents, do! Thank you, to those of you who have never given up, worked tirelessly to help care, advocated for, and loved so many of our bees with all you have!