Thursday, October 10, 2013

Thought-FILLED Thursday: Parenting with a Plan?

An important note to remember, especially when your child carries around a diagnosis that has such a "matter-of-fact" prognosis attached to it, is this:

Just as we celebrate the uniqueness of typically developing children, children with hydranencephaly are also very much unique! There is no way to predetermine what a child is capable of or what will work best in which circumstances. As a parent, all you can do is let your child be the guide while you serve as their voice and their advocate. Fight for them. Feed them some of your strength while they share their determination with you. Listen to what they are telling you, without saying anything at all. Together you'll battle the storms and appreciate the sunshine that much more! 

October's thought of the  month from our friends at You and Your Disabled Child, on Facebook: 

"There is no right and wrong way to raise a child with special needs - what works for one child might not for another, what one family can handle another may not be able to, what makes life easier for one parent might make it even more difficult for another. No two children are exactly the same, neither are any two families. Professionals and other parents can make suggestions and offer advice but should be careful not to preach, judge or tell them what to do - and should definitely not be put out if the advice they give is ignored. They might do things differently but that doesn't mean it's a better way. Many parents are already feeling inadequate and don't need to be told by others that what they are doing is wrong or not good enough. Everyone has their own way of coping with a situation, and if it's working for them that is just fine - as I said, there is no right or wrong way, it all depends on the individual circumstances."

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