Friday, October 4, 2013

Fact-Filled Friday: Doctors are not Experts

While those in our own family support community understand the fact that those in the medical community are merely "practicing" medicine, far too many individuals place their full trust in the hands of the individuals holding the degree in medicine. 

"I was sent to a neonatologist during my pregnancy because they are an expert. 
Whatever they say, HAS to be right... right?"

Most often during diagnosis a doctor advises: 


based upon the fact that the child will not:



ultimately, babies diagnosed with hydranencephaly and other similarly devastating diagnoses will not even 


not a life beyond a vegetative state; not one without necessary medical equipment to sustain life (that's what those pesky medical textbooks we can't seem to find a way to change, read anyways!)

Think this doesn't happen in the US? 

Think these stories only happen in smaller countries where medical knowledge is much more limited?

think again

It happens DAILY, likely multiple times but we have no way of knowing the numbers because too many babies are aborted and  not counted in to the statistics...

**let me point out that while some children with hydranencephaly do have extreme cases and their lives are more limited than others... several children live a "healthy" life, despite the obvious lack of the cerebral hemispheres that are "supposed" to be mandatory for life. While not a life without limitations, they certainly are not suffering through a life that is not worthy of a chance**

~I'm not here to debate the pro-life vs. pro-choice stance, but I believe wholeheartedly that parents should be given a full range of information and allowed to make the best decision for them. I can only speak for myself, as well as a few others who had similar pregnancy stories as my own, in saying that the doctors did NOT give a full range of information; but instead, presented the only scenario as death of my baby occurring before my pregnancy came to term whether it was voluntary or involuntary. Essentially, a "medically induced termination of pregnancy" was given as the choice option... and my choice to continue the pregnancy was not one that was supported.

Most recently, this article came through my email inbox:

Read it, then let's chat facts in the comments here on our blog, on our Facebook page, or over on Twitter! What would YOU do if you were faced with a terminal diagnosis for your unborn child and the doctors presented the option of termination as the "best" most "advisable" option (for those who have not faced this decision already, of course, and if you have... would you choose differently?)

Two Years Later: Boy Who Doctors Said Would Never Smile Now Lights Up a Room

by Nancy Flanders | Washington, DC | | 10/1/13 5:48 PM
Doctors had all but convinced Jen and Brad Mckinstry that they should abort their son Colton. He had been diagnosed with hydrocephalus, the buildup of fluid in the ventricles within the brain, and the prognosis was anything but good. In fact, doctors were certain that their baby boy wouldn’t live. But on the off chance that he did survive his birth, doctors said he would be a “vegetable.”
“We were told that we should terminate our pregnancy with Colton seven times,” explains Mrs. Mckinstry, “and by three different doctors. The first time they told us to terminate the pregnancy was the hardest because it was all such a shock to us. The doctor was trying to tell me about his brain disorder and I couldn’t even hear him. Everything was blurry and I felt so light headed. About a week later, we went to another doctor […] and he told us that it would be best to terminate the pregnancy and that Colton wouldn’t make it. If he did make it, he would […] never laugh or smile.”
Although they didn’t want to terminate, the couple wondered if that would be what was best for their son. They had been told it would be selfish to allow their son to live and wanted to do what was best for him. Ultimately, they turned to God and realized that Colton wasn’t created just to be aborted, that he was create for a reason. One of the reasons may just be to show the world that doctors can make mistakes too. And in Colton’s case, they made a big one.
Two and a half years after that initial diagnosis, Colton is a fun-loving, sweet boy who enjoys climbing on everything, playing with his sisters, and being silly. After birth he had surgery to put a shunt in his brain to drain the fluid, and he has since undergone numerous surgeries. He has another surgery coming up that will include reconstruction of his skull. Colton participates in occupational therapy and physical therapy, and uses a walker to get around easier. But through it all, he’s been as active as any little boy, even walking on his own, something doctors never expected. His parents couldn’t be more proud.
“The doctors are shocked,” says Mrs. Mckinstry, “and keeping telling us that he is doing amazingly well and way better than even the best case scenario they ever thought!”
The Mckinstrys’ doctors are not the first and won’t be the last to give parents inaccurate information. Recently, doctors told U.S. Rep Jaime Herrera-Beutler and her husband Dan that their unborn daughter would not survive. This month newborn Abigail became the first baby ever to survive Potter’s Syndrome. Plus, there have been numerous cases of healthy children being aborted after being misdiagnosed with a fetal abnormality.
Colton’s life and the lives of each of these children are proof that doctors make mistakes too. After all, tests can only tell them so much and prenatal testing can give many false positives. And better treatments and interventions are being discovered all the time. Any parent who receives a prenatal diagnosis of their child should get a second opinion, and always love their child enough to give him a chance. Colton is living, thriving, smiling proof of that.

LifeNews Note: Nancy is a work at home mom who writes about parenting, special needs children, and the right to life. She is the lucky mother of two spirited little girls, one who has cystic fibrosis, and she spends any free moment she can find fundraising for a cure for CF. You can read her personal blog at Reprinted from Live Action News.

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