From May 16, 2011: Bee-ography Mondays
Starting today I will be sharing a story of one little bumblebee, our amazing little ones with a hydranencephaly diagnosis, every Monday in "bee"-ography Mondays. The stories will be written by their parent and/or caregiver and shared here... a tribute to their life and legacy to the cause. In doing this I hope to help those reading better understand these little lives that have such a huge impact on the ones that love them, while also changing the many misconceptions that exist surrounding this diagnosis. I encourage you to check back every Monday to read these inspiring stories that are sure to help you believe in the power of love and the strength of our little miracles.
After we found out her diagnosis, we were not given much hope for our little girl. We were told she would never make it to her first birthday and that babies with this condition live a poor quality of life.