In 1985, when this story was orignally published in the Wall Street Journey, I was 6 years old (yeah, you do the math). I did not know anyone who had a disability or that was different, except for myself (many of you don't know, I was born with a condition that was also thought to be terminal at the time: gastroschisis).
I could have been placed in an institution had I not been fortunate enough to overcome my medical adversities... had Brayden, or any of our other little bees been born when Oliver was, their prognosis would have been much more accurate when the doctors advised imminent death. Believe it or not, those times are not entirely over as I myself was given the option of placing Brayden in a care home after birth...
Anyways, since having my own special little man and choosing to surround myself and continue to build my life around so many special little lives... I have insight to the truly beautiful, often overlooked, events in life. This story is a perfect display of that...
how an individual who never speaks a word can shape, communicate, and create a light so big that it shines far long after their journey on earth has come to an end. And how a life that some would see as a devastating burden is truly a blessing to all who allow that life to touch their own...
Here is the story of Oliver, but I encourage you to read the full book inspired by Oliver, as well as other families who reached out to Mr De Vinck upon his original published story as seen here:
Power of the Powerless: A Brother's Lesson
By Christopher de Vinck
I grew up in the house where my brother was on his back in his bed for almost 33 years, in the same corner of his room, under the same window, beside the same yellow walls. Oliver was blind, mute. His legs were twisted. He didn't have the strength to lift his head nor the intelligence to learn anything.
Today I am an English teacher, and each time I introduce my class to the play about Helen Keller, "The Miracle Worker," I tell my students about Oliver. One day, during my first year teaching, a boy in the last row raised his hand and said, "Oh, Mr. de Vinck. You mean he was a vegetable."
I stammered for a few seconds. My family and I fed Oliver. We changed his diapers, hung his clothes and bed linen on the basement line in winter, and spread them out white and clean on the lawn in the summer. I always liked to watch the grasshoppers jump on the pillowcases.
We bathed Oliver. Tickled his chest to make him laugh. Sometimes we left the radio on in his room. We pulled the shade down over his bed in the morning to keep the sun from burning his tender skin. We listened to him laugh as we watched television downstairs. We listened to him rock his arms up and down to make the bed squeak. We listened to him cough in the middle of the night.
"Well, I guess you could call him a vegetable. I called him Oliver, my brother. You would have liked him."
One October day in 1946, when my mother was pregnant with Oliver, her second son, she was overcome by fumes from a leaking coal-burning stove. My oldest brother was sleeping in his crib, which was quite high off the ground so the gas didn't affect him, My father pulled them outside, where my mother revived quickly.
On April 20, 1947, Oliver was born. A healthy looking, plump, beautiful boy.
One afternoon, a few months later, my mother brought Oliver to a window. She held him there in the sun, the bright good sun, and there Oliver looked and looked directly into the sunlight, which was the first moment my mother realized that Oliver was blind. My parents, the true heroes of this story, learned with the passing months, that blindness was only part of the problem. So they brought Oliver to Mt. Sinai Hospital in New York for tests to determine the extent of his condition.
The doctor said that he wanted to make it very clear to both my mother and father that there was absolutely nothing that could be done for Oliver. He didn't want my parents to grasp at false hope. "You could place him in an institution," he said. "But," my parents replied, "he is our son. We will take Oliver home of course." The good doctor answered, "Then take him home and love him."
Oliver grew to the size of a 10-year-old. He had a big chest, a large head. His hands and feet were those of a five-year-old, small and soft. We'd wrap a box of baby cereal for him at Christmas and place it under the tree; pat his head with a damp cloth in the middle of a July heat wave. His baptismal certificate hung on the wall above his head. A bishop came to the house and confirmed him.
Even now, five years after his death from pneumonia on March 12, 1980, Oliver still remains the weakest, most helpless human being I ever met, and yet he was one of the most powerful human beings I ever met. He could do absolutely nothing except breathe, sleep, eat, and yet he was responsible for action, love, courage, insight. When I was small my mother would say, "Isn't it wonderful that you can see?" And once she said, "When you go to heaven, Oliver will run to you, embrace you, and the first thing he will say is 'Thank you."' I remember, too, my mother explaining to me that we were blessed with Oliver in ways that were not clear to her at first.
So often parents are faced with a child who is severely retarded, but who is also hyperactive, demanding or wild, who needs constant care. So many people have little choice but to place their child in an Institution. We were fortunate that Oliver didn't need us to be in his room all day. He never knew what his condition was. We were blessed with his presence, a true presence of peace.
When I was in my early 20s, I met a girl and fell in love. After a few months I brought her home to meet my family. When my mother went to the kitchen to prepare dinner, I asked the girl, "Would you like to see Oliver?" for I had told her about my brother. "No," she answered.
Soon after, I met Roe, a lovely girl. She asked me the names of my brothers and sisters. She loved children. I thought she was wonderful. I brought her home after a few months to meet my family. Soon it was time for me to feed Oliver. I remember sheepishly asking Roe if she'd like to see him. "Sure," she said.
I sat at Oliver's bedside as Roe watched over my shoulder. I gave him his first spoonful, his second. "Can I do that?" Roe asked with ease, with freedom, with compassion, so I gave her the bowl and she fed Oliver one spoonful at a time.
The power of the powerless. Which girl would you marry? Today Roe and I have three children.
[Four years ago Christopher de Vinck, thinking "it might speak to people, this message of hope, this message of triumph," submitted the above article to The Wall Street Journal which ran it on April 10,1985. The response was immediate, people round the country writing in and telephoning, sharing their own experiences with a son or daughter who did not fit the norm. Last year de Vinck published The Power of the Powerless: A Brother's Legacy of Love (Doubleday) in which he shares further insights gained from Oliver who "was physically and mentally retarded, but he was not spiritually retarded." He includes stories of Lauren, Anthony, and Paul, told with powerful simplicity by their parents whom he visited in their homes.
Christopher de Vinck is Chairman of the English Department of a rural New Jersey high school and a doctoral candidate in education administration at Teachers College, Columbia University. -- ED.]
(Reprinted in Sunrise, June/July 1989, with permission of The Wall Street Journal Ó 1989 Dow Jones & Company, Inc. All rights reserved.)