Friday, October 5, 2012

Flashback Friday: The Beginning


As our foundation has grown and brought more awareness to hydranencephaly, I have had a few questions about who we are and where we came from. So, just a quick little snippet of our organization's birth and growth:

Our foundation began as a dream in the fall of 2010; but, with the help of a group of highly-motivated and passionate ladies, the dream became a reality. GHF incorporated in the Commonwealth of Virginia in June 14, 2011 as Brayden Alexander Global Foundation for Hydranencephaly. By November, we had realized that there were many misconceptions and a great amount of confusion associated with the name and adopted our doing business as name: Global Hydranencephaly Foundation.

While we are not officially a 501c3 tax exempt organization as of yet (lessons learned along the way), that should be coming any day and is retroactive to our date of incorporation... is my understanding.

Essentially, the name changed... however our mission and vision has been the same all along:

Through the Global Hydranencephaly Foundation, a greater passion will be shared as families are networked across the globe to ensure every child given this diagnosis has the opportunity to live and thrive in the quality of life they deserve. Families will be offered support, information, guidance, and resources. Through education and awareness campaigns, the medical community will become enlightened to the possibilities that exist for these children and the world will learn to accept this condition as simply an obstacle in the lives of these little miracles.


We are not, however, associated with any other hydranencephaly organization; we are a separate entity with differing views and separate goals. If you don't see "Bennett Buzz-bee" who was trademarked along with our logo, then we didn't approve the information and/or materials you see.



We maintain an open door policy and are completely forthright with information regarding organization and management of our business and finances. Please contact our founder & president, Alicia "Ali" Harper at President@HydranencephalyFoundation.org, should you have any questions or concerns about our foundation.

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