As for me, I was told that my baby would not survive to term so termination was our only option. Once that idea was dispelled, the typically joyous months of pregnancy were replaced by doctors appointments that were made primarily to see when he had passed... that's what we waited for. When he didn't, he was diagnosed with hydranencephaly at birth. Then we were simply told he did not have a brain & he would pass within days, a couple of months at the most. He would never recognize anyone in his life and would suffer with seizures and pain throughout.... he would never eat, he would never maintain his own body temperature, and he definitely would never show me that he loved me.
This things are absolutely false. I have yet to be in contact with a family who this prognosis has proven true for. Even those children who have passed in infancy have contributed such joy and happiness to the lives they have touched... most while never speaking a word, of course, but still shining in the lives of those who love them.
In honor of Mothers Day in the US tomorrow, we are sharing some quotes from the professionals... those who know the facts, as they have lived through them, the mommies. Those things they wish they had been told from the beginning, instead of being told "take your child home to die." May you take these words to heart & pass them along to those in your life who may face the same, or similar, circumstances in the future or even now.