Regardless of this premonition, my baby dolls did not ride in wheelchairs with feeding tubes nor did my play house include a pulse ox machine next to the crib or prescription formula bottles stacked up in the pantry. I may not have signed up for this job... but I feel so blessed to have been chosen. I am fairly certain that my special mommy friends would second that emotion, so think twice before you feel sorry for or pity our circumstances... we are perfectly happy with our job description, despite the rollercoaster ride it entails.
- I want to be understood and heard, I don’t want to be isolated when I face my daily challenges or tasks. I want the other moms, to hear my pain and know my struggles.
- I want them to understand that I am doing the best I can to cope with all the demands that are being placed upon me by my child as well as my family.
- I am also dealing with all the different comments and stares, some of the stares are kind – they smiles, but the rest are looks and shrugs that are tossed my way because my special needs child is in their presence.
- I want them to know that our daily struggles with a child with special needs are far more amplified then that of what they are experiencing. The challenges as intense as they may also be prolonged and constant, and every aspect of my families life is affected.