Friday, September 2, 2011

BUZZ: New Awareness Merchandise!

Our foundation's board and committees have been busy, busy bees!! We now have a new piece of awareness merchandise available for purchase on our Web site:


Our vinyl window clings are 5x5 and easy to apply, remove, and reapply again :) For only $4/pc they're an amazing way to raise awareness for our little bees!

And in case you're wondering where the money earned from awareness merchandise and donations is utilized, these are only a few of the expenses we are able to cover:

~domain/web site maintenance

~awareness merchandise production
     ~silicone bracelets

     ~window clings
     ~tees, bags, water bottles, Christmas cards, and much               more in production!

~Awareness/Education packets in production for distribution to care providers and medical communities

~informational flyers for distribution 


~nonprofit management/application fees

~trademark applications for our logo & name

~and much, much more working behind the scenes

Once we have obtained official 501c3 nonprofit status from the IRS, which is due no later than December (but seems like a FOREVER wait):

~we will have access to grants which will allow us to reach more families through reward of equipment/therapy grants to families in need of assistance

~provide greater advocacy services to families across the globe, with translation services to families in other countries

~work to promote our foundation's mission to a national awareness level, with the hopes of achieving a day or month of awareness 

~provide for families on an "as needed" basis, whether they need assistance in finding resources, respite care, or even adoption and other alternative care services to children born to families who are not prepared for extreme medical care conditions

~make our presence greater in the medical communities, changing the misconceptions that exist regarding our children being hopeless and bearing of a condition that is "incompatible with life"

~reaching out to achieve medical, therapeutic, and various other professionals to our board of directors
     
~achieving a greater media presence, to expand beyond the internet and find our space in television, radio, and print media

~plus much, much more!!

Mission:

Through the Brayden Alexander Global Foundation for Hydranencephaly, a greater passion will be shared as families are networked across the globe to ensure every child given this diagnosis has the opportunity to live and thrive in the quality of life they deserve. Families will be offered support, information, guidance, and resources. Through education and awareness campaigns, the medical community will become enlightened to the possibilities that exist for these children and the world will learn to accept this condition as simply an obstacle in the lives of these little miracles.

Vision:

Though a budding foundation, the efforts have the potential to change the lives of thousands of families across the globe; many already involved with the cause. Grants will be awarded for assistance with therapeutic services, equipment, medical costs, and other financial responsibilities of caring for these children. Information for adoption and designated care to insure families are not overwhelmed by the amount of involvement required in caring for these children will also be shared. Awareness campaigns and merchandise to create recognition of the cause and what this condition is will be made available. The foundation will be guided by individual family needs as it grows. The ultimate goal is not to cure, simply to insure these little lives are allowed to shine.



"Never doubt that a small group of thoughtful, committed people can change the world. Indeed, it is the only thing that ever has." 

~Margaret Mead

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