Addison Michelle Gibson was born October 17, 2006 after being diagnosed in utero with Hydranencephaly. It was a fight to even get the Doctors to understand that despite this diagnosis we wanted her for whatever time God would allow. After speaking with Doctors and being made to feel we had no other choice we signed a DNR before she was even here.
Shortly after Addison was delivered via C-section she was put in a back room of the NICU and given a warm bed and food; she would have to be strong on her own. I can't tell you how many family members we had back there, seemed 20 at a time sometimes, visiting with her not knowing if she would be here when they came back the next day.
Two weeks passed and it was clear she wasn't going to give up so easily. Addison was transferred to Houston Hospice shortly after her second week in the NICU. They didn't take many children there but felt that with her diagnosis that she met the criteria to be at their inpatient facility. Exactly a week after we were admitted to hospice Addison began to feed on her own from a bottle. Almost two weeks to the day we were admitted to Houston Hospice she was discharged.
Addison is 4 years old now, full of smiles, giggles and love. There is a sparkle in this little girls eye that pulls you in like gravity. She loves her bells and kooshball switch, any kind of music and her rain sticks.
Her favorite cuddly at home is her doll Sally,she is never without her when she is hanging out lounging!
We visited Morgans Wonderland, a wheelchair accessible theme park, last March and she had a blast.
She enjoys playing on her iPad with her brother,
attending her siblings baseball and softball games and of course cuddle time with mommy!
Every day with her is an absolute gift,
I've had a Doctor pat me in the back for taking care of her because he said understood how much of a burden she must be on me and my family. From that day on i have vowed to take a stand for parents that are left to feel alone and without hope. If you just believe in what seems to be the impossible, you might be pleasantly surprised as to what you get in return!