It's that time again, another life story written by the parent/caregiver of another little bee. Be sure to check back every Monday for a new "Bee"-graphy & new daily posts to come as well.
Mackenzie Nelson was born September 15, 2006 weighing in at 6 pounds 1 ounce, 18 1/4 inches long. To us, she was a perfect little baby girl. It wasn't until about 5 weeks after she was born that we found out she had Hydranencephaly.
After the shock wore off, I decided that I was not going to treat her any differently than I would if she didn't have this condition, and I was going to make it a life time goal to prove to these medical professionals that she is so much more than they made her out to be and that she could live life just as the rest of us.
In 2008, we took our first trip to Tijuana Mexico for her first round of stem cells. We noticed a huge change in her awareness and her muscle tightness seemed to improve some.
Mackenzie eats orally, and does so very well. She is "underweight" to the medical professionals, but she is healthy and growing, so I don't worry too much about it as she doesn't have the muscles that an "abled" child does.