Monday, July 21, 2014

Meet the Bees: And the Winners Are....

We are happy to announce the winners of the remaining two categories for registrants in this year's first annual "Let's Roll!" Hydranencephaly Awareness Walk/Run event. We announced the winners of our Wheelchair Decorating category last week, which you can check out HERE

drumroll please.......................

father of bee-beauty Grayce:

mother of bee-beauty, Burkleigh, Haley:

Tomorrow we will be publishing our event video to our YouTube channel, so be on the lookout for that; maybe even head on over and subscribe so you won't miss any of our upcoming videos, or catch-up on the videos that are there! 

From all of us at Global Hydranencephaly Foundation, thank you for helping to make our first annual walk/run event a HUGE success!! 

Friday, July 18, 2014

Fact-BUZZ Friday: Just a Laugh?

When you have a child that doctors tell you will likely not survive.... and that IF they do, they will be in a "persistent vegetative state"; unable to hear, see, love, learn, laugh, or thrive... you tend to celebrate the little things. 

When those little things turn in to BIG things, it's cause for "stop-everything-and-watch-what-my-kid-can-do"...

then watch it again...

kind of celebration.

A laugh falls in the BIG things category of celebration-causes. 



Until you discover the fact that a laugh may not be "just" a laugh...

I've written about this before via my old blog, during my pre-nonprofit in-the- making portion of this journey with hydranencephaly. 

But, it's kept alive on the web via Wellsphere. When they say, "once on the internet, forever on the internet," it's true and in this instance its a good thing! Check that post out HERE

It just so happens that updated information was published to Disabled World about a week or so ago, so I wanted to share and bring light to this little-known seizure type.

Definition from Disabled World: "A gelastic seizure, also known as "gelastic epilepsy" is a rare type of seizure that involves a sudden burst of energy, usually in the form of laughing or crying. This syndrome usually occurs for no obvious reason and is uncontrollable. It is slightly more common in males than females. The main sign of a gelastic seizure is a sudden outburst of laughter or crying with no apparent cause."

Now head on over to read the full article HERE. It's pretty interesting... but please don't let this topic stop you from enjoying those smiles and chuckles your bee shares with you!! 

photo courtesy of essexbees.co.uk


Monday, July 14, 2014

Meet the Bees Monday: Our Winner!

Meet the winner of our first global-wide hydranencephaly awareness walk/run wheelchair decorating contest....
a special thank you to all our participants in this year's First Annual event! All who participated by decorating their mode of transport will receive a token of gratitude for their amazing efforts! 

More winners announced in other categories in the days to come, so stay tuned!!

*only individuals who registered and returned their sponsor forms are eligible for prizes.

Thursday, July 10, 2014

Thoughtful Thursday: Always an Opportunity to Bee-lieve!

National Cleri-WHO?

That's what I said when I was planning this month's social media calendar. 


A clerihew is a whimsical 4-line poem with an AABB pattern, so off of the top of my head I created one as an example:

the bees keep their buzz

& they keep it because
there is no one to say
life has to be a certain way

It's THAT simple, really!! Now, let's hear yours for this Thoughtful Thursday!

Ironically, today is also "Don't Step on a Bee Day" 

Of course, the day was first created to bring awareness to bee stings in the summer time, then praised for the opportunity to bring more awareness of the shrinking honey bee population (which still continues to be of great concern). I say we recognize this day as a day to point out even more reasons to "Believe in the Impossible." Our bees sure don't let anyone "step on them" and they remind us every day that they are calling the shots, despite those medical professionals who may say otherwise!! 

image courtesy of arkinspace.com
image courtesy of magpieandcake.blogspot.com


Otherwise to celebrate this day in a fun way, how about crafting a bee hotel for your yard? It will help provide a safe stay for the bees buzzing through your area... 




PS: this blog is undergoing some SERIOUS overhauling!! expect BIG things... if you'd like your child's blog to be linked to ours, email me at President@HydranencephalyFoundation.org